Yesterday, Becky and I decided we needed a vacation. No, we’re not going away, or planning day trips, we’re taking a vacation from staff. This is not the staff we hire, it’s the staff that are sent from an agency to complete personal care.
For four months, the attendants have asked Becky when the bathroom renovation was going to be finished. Four months! About two months ago, the bath bench lost a foot, so for two months the staff have told Becky she needs a new bath bench. Obviously she isn’t smart enough to figure it out, or they have just forgotten about the bathroom renovation.
One person told Becky her room was too small (I’ll get right on that) while another told her she should clean her wheelchair every week. Really, maybe we should tell you to clean your car or your shoes every week.
The staff either come in through my bedroom, or if they use the front door, they use my bedroom as a cloak room. No problem, I didn’t need any privacy.
We have people in six days a week. Six days when Becky has to manage staff, and I have to find somewhere else to go (otherwise they pepper me with questions). We can’t do anything spontaneously; we have to call and change staff hours, and then the person on the other end of the phone wants to know why.
We decided yesterday that we both needed a break. We need a bit of freedom; to come and go as we pleased, to not have to explain what we’re doing all the time, to sleep in, and to have some privacy.
I’d like to hang a Privacy sign on my life, but I can’t. Since the accident, we have had our lives filed in triplicate with doctors, lawyers, agencies, schools, and whoever else was passing by at the time. I’ve sort of managed to cope with that, but the home invasion thing still gets on my nerves. Why do people think they have the right to tell you what to do, or to ask what you’re doing, just because they’re in your home? In England, it’s considered REALLY rude to make a negative comment about someone’s home while you are actually in it.
It would be nice if the staff were more polite, less critical, and slightly less negative, but of course, we cannot change other people. Instead, we can stop them coming in for a while. We are looking forward to our vacation, and I am already looking forward to a Sunday morning in my pajamas.